They had bits and pieces of the prosthetic done, so we could get an idea of how it will would fit and look like. We saw all the different positions the prosthetic could be placed in for Maddie to use it. Below is a "rough draft" of how the prosthetic will look. It's being held together by tape, which won't be the case when we take it home:o)
The cable that you see sticking up will be much shorter, but that will allow us to lock her arm in many positions. Right now the arm is a clear material, but will either be made flesh colored or I could do some kind of a fun fabric. The arm will fit around her shoulder and will strap around her chest. You won't see all the metal, but most will be covered when the arm is finished. The hand right now looks a little bigger than her other hand, but they do that so there is room for her to grow. Mainly this will be a device used to help her with all the daily activities that babies do. Will help her balance, stand up on furniture, and scoot or crawl. I am not sure she will crawl, but I did have a dream 2 nights ago that she was crawling. That was pretty neat and feel so much peace that she will in some way figure out how to do everything! God has been right there through all of this giving me all these encouraging dreams about Madeline. We will take her arm home the monday after Thanksgiving! So right after the fitting I walked across the street to the 680 building for Maddie's NICU follow up appointment. She was evaluated for her cognitive, motor, and verbal skills. I was thrilled to hear she was in the average range or ahead of average for all! She was able to see her P.T Elizabeth, from the NICU, who we just loved and she loved Maddie. She worked with Maddie twice a week in while in the hospital and was just thrilled with how well she was doing. So Thank you Lord. Just to hear that she is ahead and right where she should be was music to my ears. WAY TO GO MADDIE! Here is a picture with Maddie and Nurse Elnora.
Elnora has been there for all our appointments, and it had been a LONG time since we had seen her, so good to see her again! I was glad we were there today for a follow up and not an eye exam. Thank goodness those kind are over! She will need a follow up eye exam when she is 12 months, but just praying they aren't like the ones she had before. Those gave me BIG anxiety. I don't have any right to complain though because those doctors are on top of everything. We couldn't have had a better experience those 3 months and everything to follow up until now. We are so thankful for Northwestern hospital, and all the WONDERFUL Doctors, nurses, neonatologists, O.T, P.T's, and Prosthetists! Thank you! 1 Thessalonians 5:16-18 " Be Joyful always;pray continually; give thanks in all circumstances, For this is God's will for you in Christ Jesus." Amen.
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